I need your help! Sickle Cell Disease is relevant, it is a priority in our community, and there are too many people suffering needlessly alone without anyone to come to their aid for support. All over the country there are walks, runs, galas, and social gatherings in the name of Sickle Cell Disease (SCD) but still so many suffer every day! Did you know there has never been a census taken to determine how many people are living with SCD or even the trait? There is no protocol in the hospitals around this country for all emergency room staff and doctors to handle and treat SCD patients with the level of care they would give to someone in their own family. And truth be told there is no cure for SCD, but for years we keep hearing a cure is on the horizon; bone marrow (or stem cell) transplant have cured maybe 1-5% of the SCD population at best. I’ve sat on my hands long enough and I’ve tried to allow others who are paid to ensure someone like me who’s in the hospital all the time, hurting all the time, can’t get my thoughts together sometimes, and wait for the pain to subside so I can educate whoever wants to learn about this horrible disease. But you know what I’ve decided I can tell my story better than anyone else can, I can share my yesterdays that are filled with hospital stays with others better than anyone else can, and I can make change for others like me a priority because I awake everyday with SCD and I lay my head down at night with this invisible blood disorder I inherited at birth.
So, I created a resolution asking that the National NAACP make SCD a priority by including it as a national health initiative for the NAACP. Please read the resolution that can be found at www.tinakay.net under Advocacy at the bottom of the page or on Facebook go to Tina Kay page and you will find it in the left margin as a note. Once you’ve read the resolution I implore you to call the national NAACP at (410) 580-5777 or toll free at (877) NAACP-98 and express your strong desire and the utmost urgency for the Resolution Committee to accept the “Resolution for Sickle Cell Disease To Become A Health Initiative of the NAACP” sponsored by Metro Birmingham, AL #5006. We really need the resolution to pass the resolution committee who is now deciding which resolutions will go to the convention and which ones will not; and we need this resolution to make it to the national convention this summer. When using social media please use hashtag #SCDPriority on all forms of social media.
Ask anyone and everyone you know, especially members of the NAACP and elected officials in your area to make calls or send messages also in favor of the resolution. Be sure to read the resolution before you make any calls or reach people through email and social media. The resolution in its entirety can be found as a note on the Facebook page of Tina Kay (the author of the resolution). It can also be found on Tina Kay’s website advocacy at the very bottom. www.tinakay.net We can do this as a community together! Speaking with 1 Voice, 1 Purpose, and 1 Goal in mind! Share this with everyone you know in our community and with your local NAACP unit (chapters) and with anyone who care about people.
There are African proverbs that we should pay attention to:
If you want to go quickly, go alone. If you want to go far, go together.
Unity is strength, division is weakness. ~ Swahili proverb
Sticks in a bundle are unbreakable. ~ Bondei proverb
Working together as our fore fathers did in this our city, Birmingham, AL, change took place. If we could only work with the same type of attitude, we can invoke change, help those who are helpless, and provide many with better tomorrows.
By Tina Kay, NAACP Health Coordinator for Alabama